
The difficulty of Song Liuchen, from a village in Shangqiu, Henan province, who has a rare skin disease called EB, since birth, has caused a nationwide concern. Babies diagnosed with EB usually do not survive beyond two years. A doctor said she had never seen children with the pain live up to 8 years during her 33-year career.
Many kind-hearted people have offered help since his illness was highlighted in the media. As of last Tuesday, Liuchen had received 1,090 donations, totaling 327,952 yuan ($52,659). Hospitals in Beijing, including the Children's Hospital and Peking University Third Hospital have offered treatment for the little boy, Henan Daily reported.
Liuchen's skin festers every time it is touched, causing the boy severe pain from the simple activities of daily life such as walking or putting on clothes due to the friction. His mother has to change his bed sheets every day as they are covered with blood and discharge.
Wang can't help but cry when she sees her son suffering, but Liuchen comforts his mother by saying: "It doesn't hurt that much. I can stand the pain, and I will try my best to live, with you, mom."
Liuchen is in second grade at a school where he does well in his studies.
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